Brain Tumor Support Groups

Valuable information about support groups, patient care, financial concerns, emotional challenges and much more are available through several worthy organizations. Physicians and cancer experts advise brain tumor patients, family members and friends to take advantage of all available and recommended resources to assist in the battle with brain cancer. Below are several resources.

 

American Brain Tumor Association (ABTA) or 800-886-2282

A nonprofit organization dedicated to promoting brain tumor research and while providing a resource for brain tumor patients, family members and health-care providers.

 

American Cancer Society (ACS) or 800-227-2345

The American Cancer Society sponsors the following support programs. Contact the ACS to learn if the programs are available in your community .

 

Brain Tumor Foundation or 212-265-2401

The foundation supports brain tumor patients and their families through support groups, events and information exchange.

 

Brain Trust or 617-623-0066

A non-profit organization that is led primarily by volunteers with the goal of improving the quality of life for people living with brain tumors and related conditions.

 

Brain Tumor Foundation for Children or 404-252-4107

The non-profit organization is dedicated to helping children with brain and spinal cord tumors and also provides family support. This includes financial assistance, social support, information for families and funding research projects to improve treatment options and search for a cure.

 

CancerCare

CancerCare is the leading national organization committed to improving lives by providing professional services to help people manage the emotional and financial challenges of cancer.

 

Cancer.Net

This website provides timely, American Society of Clinical Oncology-approved (ASCO) information to help patients and families make informed health-care decisions. All information and content on Cancer.Net was developed and approved by the cancer doctors who are members of ASCO, making Cancer.Net the most up-to-date and trusted resource for cancer information on the internet.

 

Cancer Support Community

An international non-profit dedicated to providing support, education and hope to people affected by cancer. CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone.

 

Children’s Brain Tumor Foundation

A non-profit organization founded in 1988 by friends and families of children with brain tumors and the physicians who dedicated their lives to a cure. The Children’s Brain Tumor Foundation provides dedicated information to families and has awarded over $5 million in grants to clinical research and quality of life funds around the world.

 

Heroes of Hope™ Grey Ribbon Crusade

The Heroes of Hope™ Grey Ribbon Crusade joins organizations and individuals as one united force against brain tumors. The group provides support for those affected by the disease and serves as a hub, allowing people to gather information and share resources, while providing a vehicle for fundraising.

 

I Can Cope

I Can Cope is an educational program sponsored by the ACS to provide a supportive environment for adults with cancer and their loved ones. I Can Cope offers help so that you can meet this challenge. Knowledge is power, and the more you know about what is happening during cancer diagnosis and treatment, the better equipped you will be to handle each step of the journey.

 

Livestrong

LIVESTRONG provides support to guide people through the cancer experience, bring them together to fight cancer—and work for a world in which our fight is no longer necessary.

 

National Brain Tumor Society (NBTS) or 800-934-2873

This website is a resource for patients, families, caregivers, researchers and medical professionals engaged in brain tumor research and patient care.

 

OncoLink

OncoLink provides comprehensive information about specific types of cancer, updates on treatments, news about research advances and coping with the disease.

 

Pediatric Brain Tumor Foundation

The Pediatric Brain Tumor Foundation (PBTF) is a non-profit charitable organization that seeks to find the cause of and cure for childhood brain tumors by supporting medical research. PBTF also looks to aid in detecting the early symptoms of brain cancer and treatment of childhood brain tumors and provide educational and emotional support for children and families affected by this life-threatening disease.

 

Road to Recovery

Every day thousands of cancer patients need a ride to treatment, but some may not have a way to get there. The ACS Road to Recovery program provides transportation to and from treatment for people who have cancer and do not have a ride or are unable to drive themselves. Volunteer drivers donate their time and the use of their cars so that patients can receive the life-saving treatments they need.

 

Taking Charge of Money Matters

Taking Charge of Money Matters is one of the classes available through the ACS's I Can Cope program. The two-hour class covers money issues that may arise during or after a person's cancer treatment. The class is designed to address common financial concerns of people with cancer and their loved ones, regardless of health insurance status. The session gives participants a chance to discuss key money matters with guest speakers who are knowledgeable about financial planning.

 

"tlc" Tender Loving Care or 800-850-9445

Tender Loving Care, is a "magalog" (magazine/catalog) combining helpful articles and information about products for women coping with cancer or any cancer treatment that causes hair loss. Products include wigs, hairpieces, breast forms, prostheses, bras, hats, turbans, swimwear, and helpful accessories at the lowest possible prices. To request a copy of tlc, call 1-800-850-9445.

 

Virtual Trials or 888-295-4740

The site is an excellent resource for available Clinical Trials and emerging treatments. In addition, the site contains multiple resources for brain tumor patients.