Brain Tumor Support Groups
Valuable information about support groups, patient care, financial concerns, emotional challenges and much more are available through several worthy organizations. Physicians and cancer experts advise brain tumor patients, family members and friends take advantage of all available and recommended resources to assist in the battle with brain cancer. Below are several resources:
American Brain Tumor Association (ABTA) or 800-886-2282
A nonprofit organization dedicated to promoting brain tumor research and while providing a resource for brain tumor patients, family members and health-care providers.
Brain Tumor Foundation or 212-265-2401
The foundation supports brain tumor patients and their families through support groups, events and information exchange.
Brain Trust or 617-623-0066
A non-profit organization that is led primarily by volunteers with the goal of improving the quality of life for people living with brain tumors and related conditions.
Brain Tumor Foundation for Children or 404-252-4107
The non-profit organization is dedicated to helping children with brain and spinal cord tumors and also provides family support. This includes financial assistance, social support, information for families and funding research projects to improve treatment options and search for a cure.
This website provides timely, American Society of Clinical Oncology-approved (ASCO) information to help patients and families make informed health-care decisions. All information and content on Cancer.Net was developed and approved by the cancer doctors who are members of ASCO, making Cancer.Net the most up-to-date and trusted resource for cancer information on the internet.
The Heroes of Hope™ Grey Ribbon Crusade joins organizations and individuals as one united force against brain tumors. The group provides support for those affected by the disease and serves as a hub, allowing people to gather information and share resources, while providing a vehicle for fundraising.
National Brain Tumor Society (NBTS) or 800-934-2873
This website is a resource for patients, families, caregivers, researchers and medical professionals engaged in brain tumor research and patient care.
OncoLink provides comprehensive information about specific types of cancer, updates on treatments, news about research advances and coping with the disease.
"tlc" Tender Loving Care or 800-850-9445
Tender Loving Care, is a "magalog" (magazine/catalog) combining helpful articles and information about products for women coping with cancer or any cancer treatment that causes hair loss. Products include wigs, hairpieces, breast forms, prostheses, bras, hats, turbans, swimwear, and helpful accessories at the lowest possible prices. To request a copy of tlc, call 1-800-850-9445.
Tug McGraw Foundation or 707-255-1884
The Tug McGraw Foundation was established to raise funds for pioneering brain tumor research and to increase public awareness of the disease. TMF supports research that will improve their quality of life in the physical, social, spiritual, and cognitive areas.
Virtual Trials or 888-295-4740
The site is an excellent resource for available Clinical Trials and emerging treatments. In addition, the site contains multiple resources for brain tumor patients.
The American Cancer Society (ACS) or 800-227-2345
The American Cancer Society sponsors the following support programs. Contact the ACS to learn if the programs are available in your community .
I Can Cope is an educational program sponsored by the ACS to provide a supportive environment for adults with cancer and their loved ones. I Can Cope offers help so that you can meet this challenge. Knowledge is power, and the more you know about what is happening during cancer diagnosis and treatment, the better equipped you will be to handle each step of the journey.
Taking Charge of Money Matters is one of the classes available through the ACS's I Can Cope program. The two-hour class covers money issues that may arise during or after a person's cancer treatment. The class is designed to address common financial concerns of people with cancer and their loved ones, regardless of health insurance status. The session gives participants a chance to discuss key money matters with guest speakers who are knowledgeable about financial planning.
Every day thousands of cancer patients need a ride to treatment, but some may not have a way to get there. The ACS Road to Recovery program provides transportation to and from treatment for people who have cancer and do not have a ride or are unable to drive themselves. Volunteer drivers donate their time and the use of their cars so that patients can receive the life-saving treatments they need.